Overcoming social isolation in rural communities
WELL stands for Well-being, Education, Lifestyle and Living. Nancy Graham describes how the WELL Project in Northern Ireland provides social, educational and activity groups for people with long-term mental illness living in rural communities, using local venues, with the aim to support them into using mainstream leisure and education services, and into employment.
General practitioner exercise referral schemes have become a familiar concept since the first ones were set up in the 1980s. The Mental Health Foundation estimates there are as many as 1300 such schemes operating across the UK, with the service being offered increasingly to patients with mild to moderate depression as well as those with physical health problems (MHF, 2005).
Now, imagine if mental health professionals were able to refer their patients with long-term mental illness to a community-based service that would offer a wide range of activities and support for people to get involved. These activities could include women's social groups, arts courses, a walking group, accredited computer courses, horticulture, football, and more, and would take place in community venues, far removed from clinical settings. In their own time, users of this service would be encouraged and supported to take up vocational training or return to employment. Does this sound like an attractive option?
People with mental illness have been able to access this kind of service in Down District, Northern Ireland, since 2004. The WELL Project was set up with a grant from the Department for Social Development (DSD) outreach programme, with additional funding from Down District Council. [The outreach programme promotes social inclusion and community regeneration, targeting communities with poor infrastructure.] The WELL Project contributes to this by focusing specifically on the needs of people with severe and enduring mental illness. Its aim is to reduce the social isolation of people with long-term mental illness living in rural communities, thus increasing their ability to access education, employment and social and leisure activities, and improving their overall quality of life.
Origins
The broad scope and ambition of the project is reflected in its name, WELL, which stands for Well-being, Education, Lifestyle and Living. The originators of the project drew on research demonstrating that mental illness has an impact on all areas of life, affecting relationships with family and friends and access to education, employment and social activities. However, if an individual is supported to participate in one area, this will improve their overall functioning. For example, active participation in education will improve social skills, in addition to skills acquired in the subject. Improved social functioning will reduce a persons symptoms and promote independence.
The need for a community-based project was identified by occupational therapy staff in 1999. The Down Lisburn Trust community mental health team had highlighted a significant number of clients with long-term mental illness who were not engaged in any form of service promoting social integration, vocational training or employment. Most of these clients were living in isolated rural areas, with limited local services and poor access to transport, exacerbating their social isolation.
Led by occupational therapy, a steering group was set up to explore ways of addressing this problem. The steering group was made up of voluntary and statutory providers as well as user and carer representatives, with lead roles taken by Down Lisbum Trust and Action Mental Health (AMH), a vocational training organisation. In particular, the group sought representation from organisations with expertise in education, employment support, volunteering and community involvement.
It was decided to run a two-year pilot project, working with clients of Downpatrick AMH to increase their access to education and training. This had successful outcomes, and won a Lilly Reintegration Award. These are awarded for achievements in helping people with schizophrenia to reintegrate into society and move their lives forward. However, additional resources were needed to extend the programme to people who were not already engaged with services. Department for Social Development (DSD) funding was successfully applied for to establish a community-based service employing two staff: a project coordinator and an outreach worker. This would be a threeyear regional demonstration project, beginning in January 2004 and providing a service to 250 people in that period.
Eligibility and referral
The main criteria for people joining the project is that they are currently using mental health services and have a key worker, usually a member of the community mental health team, who will link in with the WELL Project to ensure proper support is in place. Clients have a range of mental illnesses and join the project at different stages of their recovery. The majority of participants live independently, on their own or with family, but some are still in hospital, usually preparing to be discharged. A number live in the rehabilitation unit or supported accommodation connected to the Downshire psychiatric hospital.